Cellular Memory

Now that I’m on my own, Father’s Days are bittersweet. This evening, as I was doing the dishes, I had a flashback to Father’s Day 2023. We were in San Francisco at the end of a three week stretch at UCSF and St. Francis Memorial. Sami had been treated for ongoing subclinical seizures at UCSF. And St. Francis prepared us for living with Sami’s inability to care for herself. On that particular Father’s Day, I hiked from Ocean Beach to the Golden Gate. And had a burger and beer for lunch while I wrote in my journal. As I recall, I missed our former lives. Little did I know.

We didn’t realize it at the time, but we were at the front end of what turned out to be the beginning of the end of her life. As I look back at my blog posts and journal entries from that time period, I am reminded of how anxious we all were. Of how the trauma of seeing my wife unable to articulate how she was feeling through the brain fog she was experiencing affected me physically, mentally, and emotionally. Of how seeing the woman who’d run a half marathon eight months before confined to a wheel chair broke my heart. Of how the dysfunction of the medical-insurance-industrial complex frustrated and angered me. Of my inability to articulate my fear, fatigue, and exhaustion to Sami.

Since Sami died, anniversaries have been difficult. Our wedding anniversary (August 4) and the anniversary of her birthday (November 10) are obviously hard; so is the anniversary of her passing (August 13). Knowing our daughters are without their mother is especially difficult every Mother’s Day. Celebrating Father’s Day without Sami makes the absence of our daughters all the more difficult, even though I know they are where they need to be! But these little anniversaries of the turning points in Sami’s six-plus months of living with (and dying from) glioblastoma are also extremely hard. They are reminders of the trauma and anxiety we felt in 2023.

I have found these past few weeks that I’m especially sad and tired. Part of this, I’m sure, is the melancholy I always feel when I return home after spending time with our daughters (Lara’s wedding was an incredible celebration!). But my sadness and exhaustion seem more visceral. I feel as though the cells of my body remember the stress of those June days three years ago. The physical effects of trauma and anxiety seem slow (very slow!) to leave my body.

Over the last several weeks, I’ve struggled (again) with being alone but not wanting to be in the company of others. I’ve felt dull and listless. I struggle to know what will make me happy at the moment; I feel like I’m in a holding pattern of some kind.

In my last blog post, I wrote that Sami had expressed her wishes for our daughters (not directly to me, but at least to a friend). And I wrote that Emma, and now Lara, have fulfilled Sami’s wishes for them. But as I was feeding my animals this morning, I realized that since I don’t know what Sami wished for me, I feel as though I’m in an in-between place. And as I write these words, I’m struck by the fact that I can’t ever know what she wished for me. Hard words, but maybe ultimately freeing?